My name is Helena Kirk and I’m a childhood cancer survivor. In 2009, at 3 and a-half years old, I was diagnosed with acute lymphoblastic leukemia (ALL), and had to go through 841 days of chemotherapy at Sickkids Hospital in Toronto. I’m 13 now and doing well, but my friends are still fighting and I’m determined to fight alongside them until they’re healthy.
Some of my strongest and bravest friends have lost their battle, like my best friend Jadyn who was, and still is, my biggest role model and idol. The world lost this beautiful soul in the spring of 2018. It was heartbreaking for myself and her loved ones to watch her suffer, although you would never have known it if you met her. She was a bright light that continues to shine.
This is an example of why me, my family, and all the cancer families and organizations have come together to find more pathways to kids surviving cancer.
I started my mission on a conference trip in Ottawa when I leveraged the opportunity to speak with Prime Minister Trudeau, Science Minister Kirsty Duncan, MP Anita Vandenbeld, and (at the time) Health Minister Jane Philpott in March 2017. They supported me and really helped to get this thing off the ground.
On April 26th, 2018 I returned to meet with the Minister of Health and the Chair of the Health Committee. I was honoured to speak to the All Party Women’s Caucus; you can see a video of my statement here.
During my meeting with the Minister of Health, we reviewed a proposal to the Federal Minister of Health, the Honourable Ginette Petitpas Taylor, focused on improving outcomes for Canadian children, adolescents and young adults (CAYA) with cancer.
Over 30 leading pediatric oncologists and researchers, and 31 cancer organizations have endorsed the proposal. A leading National law firm wrote an opinion that what is in the proposal is squarely in the jurisdiction of the federal government.
In June 2018, I formally presented the Proposal to Health Canada and in August 2018, I was able to make a statement to a dozen representatives of Health Canada who have now agree to start having discussions about the issues by bringing together the smartest experts in Canada.
I have met with the Minter of Finance and done statements at Pre Budget Consultation meetings requesting 17.5 million dollars over 5 years to find the initatives in the proposal (more details in the Goals and Progress tab).
…. these are the steps we are taking to find more pathways for kids to survive cancer.